About Santa Clara County Medical Association (SCCMA) was founded in 1876 by a small group of physicians who understood it was their duty to fight for their patients and profession. Confronted with the challenges of rampant quackery, epidemics of contagious disease, and a desperate need to...
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About Keeping faith with the teachings of the Roman Catholic Church and guided by the Bishop of Metuchen, Saint Peter's University Hospital is committed to humble service to humanity, especially the poor, through competence and good stewardship of resources.We minister to the whole person, body and...
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About Our vision for PFIC Network is to inspire hope in the PFIC community. Our mission is to improve the lives of patients and families worldwide affected by Progressive Familial Intrahepatic Cholestasis, PFIC. We value connection, education, and support to empower the community. We value building productive partnerships between patients/caregivers, researchers, clinicians,...
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About Launched in 2018 as a 100% virtual event, The Rare Fair was the original virtual event for the international rare disease community, seeking to connect rare disease patients, families, and other stakeholders across the globe. Frustrated by the lack of access to rare disease events for...
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About Located in Research Triangle Park in North Carolina, The Dash Alliance works to support rare disease patients and families through the creation of collaborative stakeholder relationships. Though we work to build disease-specific community resources, we are also focused on the creation of resources that serve the...
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About Team Boomer works to encourage people with cystic fibrosis to live active, healthy lifestyles and welcomes any athlete to join the team to raise funds and awareness for our cause...
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About Philadelphia Youth Basketball (PYB) leverages the iconic game of basketball to deliver life-changing opportunities and experiences. Built of, by, for, and with the communities we serve, PYB provides a safe, nurturing environment for young people to build the skill-sets and mindsets they need to succeed on...
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About PhillySafe is a non-profit organization with the mission to provide crime deterrence to urban environments. It uses the latest epidemiology and criminology research and seeks to engage community leaders in the implementation of innovative solutions to reduce crime in high crime areas.Specifically, PhillySafe has leveraged...
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About The Alagille Syndrome Alliance (ALGSA) is the leading 501c3 patient advocacy organization in the world serving families affected by Alagille Syndrome, a rare cholestatic liver disease and one of over 7,000 rare diseases in the world. The ALGSA staff and board is made up of professionals...
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About The Foundation Fighting Blindness was established in 1971 by a passionate group of families driven to find treatments and cures for inherited retinal diseases that were affecting their loved ones. At that time, little was known about these blinding retinal diseases. Very little research was...
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